Not again
I think the phrase is “how to kick someone in the teeth when they are down.”
Not only is my laptop proving impossible to fix without help, we just found out the planning application we put in to extend our house has been refused. The council notices weren’t updated – we were under the impression the meeting we were supposed to attend was tomorrow, but they moved it to yesterday without informing us (or the rest of the world), held the meeting, and refused the application in our absence. I only found out when I looked on the council website. Too bad they never updated the council website to reflect the change of date for when they were holding the meeting, eh?
I get the impression this is how a lot of political decisions are made: by forgetting to inform important people. I feel rather like Arthur Dent in The Hitchhiker’s Guide when he finds out his house is going to be bulldozed. “What do you mean you didn’t know about it? There’s been a notice at the Town Hall for three months!”
Did I mention I was having a bad year this year? Now we have to move house.
New yahoo group for failsafe NT
Steph from the yahoo NT groups and I have set up a new yahoo group for people interested in discussing food chemical intolerance and the failsafe diet in a high(er) fat, animal food oriented, nutrient-dense, Nourishing Traditions / Weston A. Price Foundation context.
http://health.groups.yahoo.com/group/FailsafeNT/
We have all of three messages to our name at the moment (yey!).
I know I have about 400(!) regular visitors at the moment. I am telling myself that most of those visitors are the googlebot, or by now I would have stage fright. I hope some of you real people who read this blog and are interested in failsafe and/or NT and/or high(er) fat will join the group. I will be there most days to answer questions and discuss things (computer access permitting).
A couple of messages posted on NT boards in the last couple of days have been along the lines of “failsafe didn’t work for us, we ate a lot of white carbohydrate, i.e. rice, bread, etc, and my kids started looking malnourished.”
I hope we can help to correct this, because it’s no way to do the failsafe diet. No failsafe dietician would advise that kind of diet, and I can only think people need a little imagination! I know I feel worse when I eat high carbohydrate and neglect to eat red meat, regardless of the failsafe context.
I can see how amines can make people nervous of meat, but please don’t let this put you off eating properly and finding a good supply of fresh, non-vacuum packed meat. Vacuum packing does not preserve meat (any more than it preserves salad leaves), it allows the meat to decay silently without turning brown. Meat is something that I suspect a lot of people go wrong with. Some, because they don’t have a fresh enough supply of meat, so failsafe never appears to work properly. Others because they give up eating red meat and lose out on a lot of vital nutrients.
Why am I distractedly talking about red meat?! Well, since my car was vandalised I am stranded in Matlock and can’t get out to the Chatsworth farm shop to get some fresh meat. We ran out about a week ago. I have been craving red meat for about four days now. All I can think about is red meat! Nothing is substituting, not shellfish or fish, not eggs, not milk, not pulses and wheat germ, not iron supplements. How on earth I ever managed to be a vegetarian for so long is beyond me. At least I listen to what my body says now.
Back to the subject at hand. We really want to hear from people. We want to raise awareness! We want to make some noise! Heh. It’s ironic that at the same time the failsafe group was set up, an NT thyroid group was set up, and they already have 180 messages. I haven’t read them all but I clicked on a few, and they included complaints of: mysterious bouts of insomnia, nightmares, racing heart, palpatations, fatigue… These people all think they have thyroid problems because of these mysterious symptoms. No they don’t!
Did I mention what tyramine and salicylates do to the thyroid? Gosh I have a lot of work to do.
Just great
My laptop is dead. I was working on some long articles for my food intolerance site when it died, and I don’t have any other copies of them. I hope the hard disk is intact, but the laptop is fried – think it was caused by an electrical surge. I will now not have regular access to a computer for some time (this one is being borrowed and my partner will be wanting to work on it!).
I am very sorry if I owe you something, it may be a while before I can get back to people, I’m doing the best I can and I’m still gutted I may have lost a lot of work.
Really, I’ve had enough luck lately. I had my car smashed up last week. A month ago my sister developed deep vein thrombosis due to medical negligence (just like me), she had been put on the third generation pill by an idiot who misinformed her as to the nature of the pill and ignored her concerns about having factor V leiden thrombophilia.
This is turning out to be a really wonderful year. I’m worried about three of my relatives, all of whom are on/off antidepressants for what I think is an inherited food chemical intolerance problem. My best friend owes me two apologies now, one for the nasty email she sent, the other for blocking me on MSN messenger… My partner has been going through hell with his epilepsy and “Mel Gibson” re-dislocating shoulder. My mother has been in and out of hospital and can no longer walk or even feed herself. My grandmother died.
I think 2006 will go down in family history as the worst year ever. Failsafe is the only good thing that has happened to me this year. I’m not sure I could have coped with fibromyalgia and eczema on top of everything else.
Germanium
Something I have noticed is that lentils seem to give me energy and clear my head. Wheat germ seems to do the same thing, as long as I don’t eat it too often. I don’t think this is because they are low GI carbs because oysters and mussels have the very same effect – but scallops don’t. I could also blame it on the folic acid lentils and wheat germ contain, or the betaine wheat germ contains, but one common factor amongst all of these foods is they are particularly high in trace minerals. Oysters are high in zinc and copper, and mussels are high in manganese. Yet supplements do not have this effect on me, in fact, I have very negative experiences with zinc.
One thing they are all purportedly high in (there are no proper tables), is germanium. According to mainstream medicine, it’s a supposedly useless and potentially dangerous mineral. According to a standard safetly data sheet, absolutely harmless. According to the world of alternative medicine, something of a godsend. The claims are that germanium sesquioxide is somehow involved in processing oxygen in the body and releasing energy, that it’s extremely good for asthma, and that it fights cancer. On the packet it says “do not take at night.” I had to buy it from the US, of course, because the UK government forced a voluntary withdrawal of germanium sesquioxide from the UK market a few years ago (something this government seems to be very good at, forcing ‘voluntary’ withdrawals).
Being a total skeptic, I would rather make my own mind up as to what germanium does than listen to anyone else. So in typical fashion, I blew my lentil trial by taking some germanium yesterday morning. I didn’t go to bed until 1am because I wasn’t tired, and I woke up at 5am and couldn’t get back to sleep. I will probably collapse this afternoon!
[Edit: a number of further trials proved to me that germanium is quite a strong stimulant and should be avoided unless you really need a kick up the butt!]
Red split lentils
I’m currently doing a red split lentils experiment. Pre-failsafe, lentils are something I associated with hypoglycaemia, bad digestion, and feeling like I was going to die. A few weeks into failsafe, I had some lentils, chickpeas and rice, and I couldn’t get out of bed the next day. I blamed this on the fact that they supposedly contain small amounts of histamine, and puzzled as to why they were allowed on the elimination diet. However, I realised eventually that I had done something stupid, as the (organic) chickpeas were out of a can and smelled slightly sulphurous, so could have formed amines or have contained undeclared sulphites. [Edit: no, I know now it was because I had mistakenly eaten some basmati rice!]
I have experimented with lentils a few times and never experienced the same sensation again. However, they seemed to be very good at completely clogging up my guts. I sometimes seem to have strange reactions to rice [edit: that would be the basmati], and oats always seem to make me irritable and achy. I even had some pretty intense bleeding one time, when I ate lentils with a tablespoon of (illegal) wild rice mixed in, and it wasn’t, umm, a mechanical bleed. Whether it’s a lectin thing, or an indigestible fibre/starch thing, or something else, I don’t know yet. [Edit: it was a salicylate thing].
I’ve been doing a lentil trial for about five days now. I have a bit of ticcing in my eye muscles, a little bit of tinnitus, and a strange off-kilter kind of energy, and I’m a bit “touchy”. One of my symptoms is I get irritable about personal space and being touched and I can push people away when I actually want a hug from them (sounds like Asperger’s doesn’t it?). Fortunately my long suffering partner doesn’t seem to mind. I also I currently have a very low tolerance level for mardy/negative/arrogant/patronising/teenager-like/sulky people – something I have a problem with anyway but I can normally keep in check without feeling like I’m going to say something really rude, like “f*ing grow up”. Curiously, my guts have been absolutely fine. I’m not sure I could cope with eating them every day as the tinnitus gets quite annoying especially at night, but I think I can include them now and then.
Heart disease, leukotrienes
Everything makes more sense with the leukotriene connection, for example, the fact that a wide spectrum of autoimmune diseases are connected with food chemical intolerance.
One of the conversation points that is grossly overshadowed by the very tiresome “it’s sat fat and cholesterol/it’s not sat fat and cholesterol” heart disease debate, is the fact that there is actually quite a lot of evidence to suggest that heart disease is an autoimmune disease; that like a number of autoimmune diseases it is associated with chronic inflammation, and high leukotriene levels.
There are 224 citations in pubmed for leukotrienes + heart disease. Included are a paper demonstrating that a gene variation in FLAP that increases leukotriene production doubles the risk of heart attacks. FLAP polymorphisms have also been highlighted in asthma. Read a brief discussion here. And a paper with an amusingly puzzled abstract regarding “aspirin insensitive eicosanoid biosynthesis in cardiovascular disease” which points out the now rather obvious fact that “enhanced production of vasoactive cysteinyl leukotrienes (cys-LTs) occurs in unstable angina despite conventional antithrombotic and antianginal treatment.” Which they would, wouldn’t they, because salicylates cause that to happen, not prevent it as the authors were hoping.
The involvement of salicylates in leukotriene production would account for that rash of contradictory studies over recent years that show that aspirin and other NSAIDs thin the blood but somehow increase the likelihood of stroke and heart attack. The fact that particular genes are associated with enhanced leukotriene production and salicylate intolerance in asthma makes me feel as though I’ve uncovered a sneaky mass-extermination experiment that involves killing off genetically salicylate intolerant individuals with a baby aspirin prescription.
Samter’s triad
I keep meaning to blog this and forgetting:
Samter’s triad is a medical condition consisting of asthma, aspirin sensitivity, and nasal polyposis. It occurs in mid-life (twenties and thirties are the most common onset times) and may not include any allergies. It is also known as aspirin-sensitive asthma, aspirin triad, Widal’s triad, and aspirin induced asthma and rhinitis (AIAR).
[...]
The cause of Samter’s triad is unknown, but it is widely believed that the disorder is caused by an anomaly in the arachidonic acid cascade, which causes undue production of leukotrienes, a series of chemicals involved in the body’s inflammatory response. When prostaglandin production is blocked by NSAIDS like aspirin, the cascade shunts entirely to leukotrienes, producing the severe allergy-like effects. Samter’s triad
So, by suppressing one part of the arachidonic acid cascade (prostoglandin production), salicylates increase the production of leukotrienes.
In asthma, “Leukotrienes are involved in asthmatic and allergic reactions and act to sustain inflammatory reactions. [...] Leukotrienes also have a powerful effect in vasoconstriction particularly of venules and of bronchoconstriction, they also increase vascular permeability.”
Rosacea is characterised by vascular permeability and a leukotriene-rich response. Facial flushing is a common food chemical intolerance reaction.
Atopic dermatitis is characterised by increased leukotriene production, and has been treated successfully with leukotriene antagonists.
Something interesting is that milk thistle also suppresses the formation of leukotrienes during inflammatory response.
Asperger’s Syndrome
Asperger Syndrome or (Asperger’s Disorder) is a neurobiological disorder named for a Viennese physician, Hans Asperger, who in 1944 published a paper which described a pattern of behaviors in several young boys who had normal intelligence and language development, but who also exhibited autistic-like behaviors and marked deficiencies in social and communication skills. In spite of the publication of his paper in the 1940′s, it wasn’t until 1994 that Asperger Syndrome was added to the DSM IV and only in the past few years has AS been recognized by professionals and parents.
Individuals with AS can exhibit a variety of characteristics and the disorder can range from mild to severe. Persons with AS show marked deficiencies in social skills,
Yep. I don’t know how to make friends with people. I don’t know how to keep friends. I don’t know how to answer emails from friends. I have to work hard at social niceties. If a friend hurts me, I am like the elephant that never forgets (bitter, twisted).
have difficulties with transitions or changes and prefer sameness.
Not exactly. I get bored by sameness. I have to move house every couple of years. I have to change my specialist subject/career every few years. This is supposed to be an ADD/ADHD trait. However, I feel really “put out” and panicky when people change things at short notice, for example, if I am given some new work to do, it will take me a day to get used to the idea of doing it. My maternal grandmother was an absolute slave of routine. Nothing would alter her plans, come hell or high water. She would complain about not seeing her grandchildren, but she wouldn’t go out of her way and delay her Saturday shopping trip for a couple of hours to see us!
They often have obsessive routines and may be preoccupied with a particular subject of interest.
Yep. The food/nutrition obsession is justified, but yep. I’ve always been obsessive, and as a teenager had seriously obsessive crushes on some unlikely people. I had a lot of OCD traits: hand washing, also, washing new things I bought from shops. Strange teenage obsession with stationery. When I was a kid I used to climb one side of the climbing frame, and have to climb the other side. I had to do everything ten times. I had to jump ten times, and if one hand touched the floor, the other hand had to touch the floor, then I used to have to touch the floor ten times to make it even… My sister had this trait too, but to a much lesser extent. She was the hyperactive one.
They have a great deal of difficulty reading nonverbal cues (body language) and very often the individual with AS has difficulty determining proper body space.
I think I’m actually good at this, but the result is it makes me paranoid because I can tell when people are taking the piss or being fake. I don’t have any problems with body space, but I get very put out when someone enters my space.
Often overly sensitive to sounds, tastes, smells, and sights, the person with AS may prefer soft clothing, certain foods, and be bothered by sounds or lights no one else seems to hear or see.
This makes me laugh, because it’s so “me” it’s untrue. I’m like “turn the radio DOWN!!!!” or “what is that annoying noise?!” all the time, and like Captain Hook, I can’t stand ticking clocks. Or dripping taps, or high-pitched almost inaudible whining from electrical equipment. I was a very picky eater as a child. This was trained out of me, but now I understand why I need to be on a bland food diet. I’m ultra-sensitive to labels in clothing, scratchy seams, anything stiff, tight, or made of wool. I hold my breath all the time when I smell something nasty. I hate it when the room is too dark or too light. I am always complaining it’s too hot or too cold.
It’s important to remember that the person with AS perceives the world very differently.
I suppose since I’m a subjective observer, I can’t really comment on what is a normal way to perceive the world, but I’d rather be me than most of the other people I meet.
Therefore, many behaviors that seem odd or unusual are due to those neurological differences and not the result of intentional rudeness or bad behavior, and most certainly not the result of “improper parenting”.
By definition, those with AS have a normal IQ and many individuals (although not all), exhibit exceptional skill or talent in a specific area.
Of course!
Because of their high degree of functionality and their naiveté, those with AS are often viewed as eccentric or odd and can easily become victims of teasing and bullying.
That would be an accurate description of my miserable life as a child and a teenager. I was very naive. I was badly bullied.
While language development seems, on the surface, normal, individuals with AS often have deficits in pragmatics and prosody. Vocabularies may be extraordinarily rich and some children sound like “little professors.” However, persons with AS can be extremely literal and have difficulty using language in a social context.
I do have a big vocabularly, I do a lot of reading and always have. I was an annoying smart-arse who used long words when I was a kid. My dad has this habit too, and it’s really embarrassing to watch when he does it when he’s talking to a builder or a labourer. I muddle up the words in clichés all the time or word-substitute by mistake. I’m not sure what specifically is meant by a social context. The definitions of pragmatics and prosody are:
Pragmatics:
Linguistics. the analysis of language in terms of the situational context within which utterances are made, including the knowledge and beliefs of the speaker and the relation between speaker and listener.
Prosody:
1. the science or study of poetic meters and versification.
2. a particular or distinctive system of metrics and versification: Milton’s prosody.
3. Linguistics. the stress and intonation patterns of an utterance.
Pragmatics: you’re not kidding. I have a habit of assuming that people think the same way as me about the world, i.e. I might offend someone religious by assuming they are an atheist like me, or end up in a misunderstanding because I assume someone knows more about something than they actually do.
Prosody: I have a postgrad degree in writing, but I am absolutely useless at rhyming, structured verse. I don’t think my language is repetitive. I do often exaggerate or get the emphasis wrong when I say things. Sometimes I sound stilted. I am not very good at speaking out loud and have problems completing sentences, I tend to let them trail off into a “…” assuming that people get the meaning. This is probably very irritating.
At this time there is a great deal of debate as to exactly where AS fits. It is presently described as an autism spectrum disorder and Uta Frith, in her book AUTISM AND ASPERGER’S SYNDROME, described AS individuals as “having a dash of Autism”. Some professionals feel that AS is the same as High Functioning Autism, while others feel that it is better described as a Nonverbal Learning Disability. AS shares many of the characteristics of PDD-NOS (Pervasive Developmental Disorder; Not otherwise specified), HFA, and NLD and because it was virtually unknown until a few years ago, many individuals either received an incorrect diagnosis or remained undiagnosed. For example, it is not at all uncommon for a child who was initially diagnosed with ADD or ADHD be re-diagnosed with AS. In addition, some individuals who were originally diagnosed with HFA or PDD-NOS are now being given the AS diagnosis and many individuals have a dual diagnosis of Asperger Syndrome and High Functioning Autism.
I guess I could rediagnose myself.
Asperger’s definition from OASIS: What is Asperger Syndrome?
Whatever the case, Asperger’s syndrome is a good thing for the human race.
Chloe O’Brian
We’re having a 24 series 5 fest at home right now. I was inspired to put a picture of Chloe O’Brian on my msn messenger profile because, well, she uh, just about sums up my personality disorder.
She displays extraordinary mastery of computer hardware and software but has horrible social skills, displaying symptoms consistent with Asperger syndrome.
Everyone hates Chloe because she’s so annoying and always says the wrong thing and is embarrassing, as well as being more intelligent than everyone else in the office. Everyone hates intelligent people, especially when they know it. I actually relate to Chloe and I find her very amusing.
Of course I’m nowhere near as weird or as intelligent as Chloe, but I still always say things that I shouldn’t and freak people out, or find myself slapping my head in annoyance when people don’t “get” it, then wondering “why do I do that? I hate myself!” I spend a lot of time feeling guilty about it. Yes, I do sneer internally when people are stupid. This is partly because I feel like other people are sneering at me. I just have to go about my normal life in an office and within a couple of weeks I’ve been labelled as the Chloe who doesn’t talk to anyone and only ever speaks to make some sort of frustrated, sarcastic outburst that I always regret. I can be hostile. I try very hard to be nice. I relate to animals much better than humans. Animals always put a smile on my face. Sometimes I make nasty remarks about people walking down the street, usually if they’re wearing ridiculous clothes. I seem to generate some sort of repulsion field that stops me making friends. I never learned the niceties of conversation like “how are you?” or “how is your job going?”, which always felt fake to say. I still struggle to spit them out today. I do not “do” offices well. I used to be much worse than I am.
I’m not a nasty person. I often think about ways I can try and help people, whether that’s because they’re sick, or because they have social problems of their own. I feel really sorry for people who are ill or who don’t fit in. The rest of the time my thoughts are focussed on something more abstract, such as biochemistry, nutrition, politics, or the design of society.
I’ve always joked to myself that I’m a bit of a social autistic. I always had to put a phenomenal amount of work into figuring out what was going on in other people’s heads. I always used to either over-think or under-think things. When people say or do things I just don’t understand I’m always really shocked by it. As a teenager I was such a social retard that I literally couldn’t even look people in the eyes. I was defined as “shy” by my family and “a snob” by my classmates. “Shy” really isn’t the word for it as it was far more extreme than shyness. Being defined as “a snob” really hurt me, because I wasn’t. I regarded myself as lower on the social ladder than everyone else. If anyone suggests that I’m a snob or says something like “you think you are more intelligent than everyone else,” then even today I am totally crushed and hurt by it and I simply can’t forgive them. Even now I don’t like putting my friends out by even emailing them about my life.
Because my level of social weirdness is relatively mild, I doubt I’d qualify as having Asperger’s on the tests. Besides, I know how to cheat those kinds of tests anyway.
Autism and Asperger’s are food chemical related.
Someone with Asperger’s left a message on my blog a few weeks ago. He had diagnosed himself with Asperger’s as an adult. Typical of someone with Asperger’s to diagnose themselves!
Parachutes
A serious point from an amusing medical review:
Only two options exist. The first is that we accept that, under exceptional circumstances, common sense might be applied when considering the potential risks and benefits of interventions. The second is that we continue our quest for the holy grail of exclusively evidence based interventions and preclude parachute use outside the context of a properly conducted trial. The dependency we have created in our population may make recruitment of the unenlightened masses to such a trial difficult. If so, we feel assured that those who advocate evidence based medicine and criticise use of interventions that lack an evidence base will not hesitate to demonstrate their commitment by volunteering for a double blind, randomised, placebo controlled, crossover trial. Parachute use to prevent death and major trauma related to gravitational challenge: systematic review of randomised controlled trials
“Individuals who insist that all interventions need to be validated by a randomised controlled trial need to come down to earth with a bump.”
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